Bray develops collaborations to support the design and implementation of participant-centered studies. She also serves on the All of Us National Advisory Panel, the Digital Medicine Society Scientific Leadership Board, and the National Academies of Sciences, Engineering, and Medicine (NASEM) Health Science Policy Board. Previously, Bray led engagement for the Duke Clinical Research Institute Project Baseline Study Coordinating Center and served as co-chair on the Advisory Committee to the NIH Director that authored the Precision Medicine Initiative's Cohort Program.
Patients and their caregivers - particularly in the case of patients who with serious or life-threatening illnesses - are tired of waiting on the sidelines for research to come to them (for example, to find them for clinical trials or to address questions of importance to patients). Increasingly patients are seizing greater opportunities to have access to their health information (including genomic/genetic data and clinical data from electronic medical records, including images) to contribute this data directly to research initiatives that they trust and that are addressing questions of importance to them (either because they could benefit individually or the research is focused on questions the patient believes are important). This panel will showcase existing initiatives that are putting patients (and patient groups) more in the driver’s seat with respect to precision medicine.