Session Chair Profile
Ph.D., Senior Research Scholar, Stanford Center for Biomedical Ethics and Faculty in the Program in Science, Technology and Society (STS), Stanford University
Dr. Lee is a medical anthropologist whose research focuses on the sociocultural and ethical issues of emerging genomic technologies and their translation into clinical practice. She leads studies on public attitudes towards governance and use of clinical samples and data in research, the ethics of scientific approaches to concepts of race, ethnicity and ancestry in human genetic variation, and the ethics of entrepreneurship and the social and cultural dimensions of innovation. Dr. Lee serves on the Scientific Advisory Board for the Kaiser Permanente National Biobank and the Genomics and Society Working Group at the National Human Genome Research Institute. She was past Chairperson of the Institutional Review Board at the Cancer Prevention Institute of California and served on the NIH Social and Ethical Issues in Research Committee for Scientific Review.
Session Abstract – PMWC 2017 Silicon Valley
Session Synopsis: Widespread data sharing will radically accelerate precision medicine, making discovery and treatment more efficient. However, we must be mindful of the rights of patients to access their data and control its use and distribution. Respecting and enforcing these rights — including the right to privacy — will turn patients into partners and provide an incentive for even broader data sharing.