M.D., M.A.S., Assistant Professor of Medicine (Nephrology), UCSF
Mitchell Lunn is a physician-scientist who employs relationship-based community engagement and technology in clinical research to characterize the health and well-being of sexual and gender minority (SGM) populations and improve disparities. Mitchell co-directs The PRIDE Study (pridestudy.org) – a national, online, prospective, longitudinal cohort study of over 12,300 SGM individuals that examines how being a SGM influences one’s physical, mental, or social health. Mitchell co-directs PRIDEnet, a participant-powered research network that engages SGM communities at all stages of the research process with highly active Participant Advisory Committee and a national Community Partner Consortium comprised of 41 SGM-serving health centers, community centers, and service/advocacy organizations. Mitchell’s group also helps ensure that the All of Us Research Program is welcoming and affirming for SGM people by reviewing study procedures, training staff, and conducting outreach and education.
Session Abstract – PMWC 2019 Silicon Valley
Session Synopsis: Sharing health information such that the status quo is disrupted, and all stakeholders have access is difficult. Misaligned incentives, incompatible technology systems, and even a lack of common nomenclature makes this a huge challenge. Successful data sharing empowers researchers, data scientists, citizen scientists, patients, and clinicians. This panel explores novel ways to gather and share data for the benefit of people.