Bastian Greshake Tzovaras is the Director of Research at Open Humans, a non-profit organization that provides an open participatory science ecosystem. His work is at the intersection of citizen science, the quantified self and traditional research. With Open Humans he brings together individuals around sharing and re-using their personal data to perform new kinds of research across disciplines. Before joining Open Humans, Bastian founded the crowdsourced personal genomics data repository openSNP which puts genomes into the public domain and did a PhD in Bioinformatics.
Session Abstract – PMWC 2019 Silicon Valley
Session Synopsis: With the increase of DNA sequencing, we see a rise in data accumulation and a greater need for correlation with clinical information and patient reported outcomes. Unfortunately, most of that data is siloed. Recognizing that individuals should control their data and incentivizing them to contribute it to research requires a new paradigm. This session will focus on different approaches of secure data sharing via new, next generation technologies and trusted systems that also reward individuals to share their data.