Session Abstract

Session Synopsis: Scientists and investors get excited about breakthrough science. Patients and the people who care about them get excited about knocking back a cancer with effectiveness never before dreamed possible. They have memorable stories to tell that will inspire you and remind you of why you devoted yourself to science in the first place.

Session Chair Profile

M.S., Co-Founder & President, Patient Power LLC
Biography

Andrew is one of the best known cancer patient-advocates, leading Patient Power in the US and Europe. Since 1984, Andrew has been a pioneer in educational programs for patients and the people who care about them. In 1996 he became a patient himself, diagnosed with chronic lymphocytic leukemia. He was treated successfully in a phase II trial. In 2011 he was diagnosed with a second cancer, myelofibrosis, and takes an oral JAK2 inhibitor to control the disease. Andrew enjoys a normal life and continues to lead online and in person programs via patientpower.info that reach almost 100,000 patients each month. In total he has hosted more than 5,000 interview programs for patients. He is the author of the acclaimed book, “The Web-Savvy Patient.” A television journalist by training, Andrew has an undergraduate degree from UNC-Chapel Hill and a Masters in Journalism from Columbia.

Speaker Profile

MBA, Co-Founder/Chief Operating Officer, Patient Power LLC
Biography

Esther Schorr is co-founder and Chief Operating Officer of Patient Power, a leading online channel for cancer patients and family members. She has worked with her spouse, Andrew, on patient and family education projects for more than 30 years. She has supported him in his cancer journey since diagnosis in Seattle in April 1996. Esther is passionate about empowering “care partners” and is a strong believer that education leads to empowerment and better care. Most recently, she has been developing a Care Partner Center on the patientpower.info to help connect care partners with each other for support and information sharing, as well as surface resources to help care partners navigate their special role in the healthcare and advocacy journey. Esther’s experience as a business and marketing consultant and project manager spans high technology, finance, hospitality, not-for-profit, and health care sectors. Esther has an undergraduate degree in communications and an MBA, both from UCLA.

Speaker Profile

Stage 4 Lung Cancer Survivor, Patient Advocate
Biography

I was diagnosed with Stage 4 Lung Cancer in June of 2009. Since then I have undergone radiation and chemotherapy for the lung cancer, and Genzar for metastasis to my liver. I started on Tarceva in January of 2010 and it kept me stable for over six years. In November of 2015 after a new tumor was discovered in my left lung, I underwent genomic sequencing. I decided on Opdivo and again have stable disease after 23 infusions. In November of 2016 a lung bleb collapsed my right lung which required a Vat’s procedure and a Talc procedure to correct. After these procedures, my lung looked normal and a biopsy of the tissue showed no sign of cancer. I met Penny Blume the love of my life on a cancer web site in 2011. Penny passed from small cell lung cancer on 1-21-2014, my last promise to her was to continue to advocate for lung cancer research and awareness.

Speaker Profile

Stage IV Lung Cancer Survivor, Patient Advocate
Biography

Lisa Goldman is a lung cancer survivor and patient advocate from the San Francisco Bay Area. She was diagnosed with lung cancer in 2014 after being misdiagnosed with irritated airways and pneumonia. Lisa has a passion for educating others about lung cancer and writes about her journey with lung cancer in her blog, EveryBreathITake. Along with fighting against misunderstanding about lung cancer, she enjoys her time as a wife, mother, blogger and cyclist/Pilates instructor.